My Battle With The Beast

2018, faith, grief, loss, Toby

August holds my fear. It holds my happiness and feeling of wholeness. August is where ‘who I was’ lives and ‘who I became’ appeared. August holds my sons last breath. It holds my whole heart. August holds captive my sons future and every motherly wish I could ever have for him.

As I stand on the doorstep of another anniversary, I have started to wander into the past, hoping to pull with me each and every moment, no matter how significantly small, from our final weeks with Toby. But, as it does in a grievers soul, the terrifying fear and stillness, that lives inside the 24th of this month; the demons that guard the door back into my life two years ago growl and snarl looking directly into my face, almost taunting me. “Come in. Step through that door again. You think you have more armor, better armor, this year? Give it a try.” Taunting me.

There have been moments over the past few weeks when I can feel the anxiety of battle manifesting in my bones. Like my body knows what’s coming, but my mind, it is trying to focus. Realign. The ache inside my bones. The heaviness inside my arms – 9lbs of happiness, to be exact, it’s there. I feel it. My heart beating so fast in my chest, I am afraid that because it is shattered it’s going to break lose inside me and I am going to lose the little pockets of hope that I have been digging for, forever.

Have you ever thought about your heart? I don’t mean what the science tells us. I mean really thought about how big our hearts get when they are filled with love – real love?

How do our hearts get that big?

It’s almost as if the happiness, joy, thankfulness, wonder, awe, pride, excitement – it all seeps out into our pours and tells us “This is happiness. This is what you were made for.” Have you felt that?

I have. I did. Two years ago. Toby was 12 weeks old. I was in the car. Sitting at a stoplight, talking and singing with Luke. I sat and watched both of my boys in the rear view mirror – Luke laughing and Toby looking across the back seat at his brother with curious eyes. My heart swelled. I looked at them and thought “My God. They’re so beautiful. I am so lucky to be their Mom. I couldn’t love them more.”

I am caught in that moment. That was the morning of August 24. Those were the final moments I had with Toby before I dropped him off for work.

How in Gods name could I have left him that day and not known how our lives would change?

I can still feel that feeling, except now when it comes over me, tears flow from my eyes so heavily and they don’t stop for a very long time. My breath is sucked out from within and I can feel all the brokenness inside me.

That’s where my happiness lives – inside the early hours of August 24. When I thought I was living my dream. What I had prayed for, longed for, worked for, wished for – my whole, beautiful family. Literally my pride and joy. Were right beside me and in an instant, gone.

That is also where the deepest pain and sorrow, pain I didn’t even know existed, came alive. It was awakened. Its rumbling that day, its pressure to get out of those places it was locked in, and melt my soul, it succeeded.

That pain is like lava, it is so fiercely hot, paralyzing, it melts every other feeling away. It turns every feeling to stone. It molds your heart into a shape that is unrecognizable and also leaves you feeling just the same – “Who is this? Who am I looking at? What did we do to deserve this? Where is my life?”

Where is my son?”

August is my month where all these demons come alive. It is the worst month of the year for me – where I have been climbing to get to for 24 months has to wrestle with the Devil and where he wants to drag me back down to. Where my faith is tested every second of the day and where the pain of becoming a grieving mother never dulls.

Pray for me, as I go to battle with this beast. Remind me, in any way possible, that our beautiful Toby is still alive inside all those million pieces that my heart has been broken into. Show my family his love and joy can make a difference in someone’s day. Those are what I arm myself with as the knob turns to open the door on this horrific month.

August holds my son & my heart.

God help this broken mother make it through.

God’s Timing

2018, faith, Family, grief, loss, Parenting, Toby

I lay in bed last night listening to the rain on the windows of the house. The wind blew so fiercely it felt as though it was something swiping through the air, grabbing, lifting whatever it could – then it was gone. I listened to it for a few moments. It happened two, three, times. It felt like I was having a déjà vu moment. I closed my eyes tightly trying to recenter my thoughts, away from the weather outside, then the rain hit again. When I opened my eyes, it hit me. I hit the home button on my phone and Toby’s smiling face appeared; I scanned to the date – the 23rd.

17 months ago Toby was asleep in his crib. 17 months ago this morning I could have looked at him on the monitor and he would have been right there. 17 months ago I could have walked down the hall ten steps and been standing over him. Today, if I walk 10 steps, everything’s still there – except Toby.

For the past 17 months I have honed my “selective hearing” powers. Although well intended, more often than not, a cliche phrase hurts me, more than someone saying nothing at all.

He’s in a better place.

God needed another angel.

Everything happens for a reason.

God never gives you more than you can handle.

…Yes. Yes, actually he can. He did. I was given more than I could ever possibly handle. Our son was given to us – healthy, beautiful, thriving, sweet, handsome, funny, loving – absolutely perfect. Exactly what we prayed for. Then, after 12 weeks and 5 days on this Earth, in one strong swoop, like the rain/wind last night, he was taken from our arms and given his wings.

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It rained the night of August 24. I remember sitting on our living room couch, staring at the wall, listing to the rain. It was pouring. I literally could not wrap my head around what was even happening. I thought “Why would Heaven be crying? They gained the most beautiful angel this evening. They have Toby – why would they cry?”

I’ve had many different discussions with people over the last 17 months having to do with our control in life. My realization thought 17 months of grieving the death of my son – we have no control.

We can do everything possible. Reroute our days; change our schedules; plan for everything; stress over the ‘What if’s?’ It is not in our control.

Matthew 24:36 says:

But about that day or hour no one knows, not even the angels in Heaven, nor the Son, but only the Father.

We think that we have time. Time to get healthy. Time to take a trip. Time to move across country. Time to take a job you’d never considered.

We think that we have more time. I’ll call my parents tomorrow. I’ll apologize in a few days. I won’t say something like that next time. I will stick up for them (or myself) next time.

What if there isn’t a next time?

We are on God’s watch. Here on Earth.

During the first few weeks after Toby died I walked around in a fog. I’d replay moments in my mind and guilt would set in – What if I didn’t do enough for him? I’d literally drive myself into a paranoia. Until one day, I was so deep in grief and angry with everything and everyone. I stood in our empty house, at Toby’s crib, with my hands gripped on his bed rail – yelling anything and everything to the Heavens.  “Are you listening? We are good parents and we love our boys with every breath we have.

I sank to the floor, crying, repeating “Why did you take him! I don’t know how to do this without him! I can’t do this without my son!

This dark day forever changed my relationship with God. No, I did not receive an answer from Him. I will not have an answer until the day I stand before his thrown, Toby in my arms. I have accepted that. I have not yet accepted His timing. I have not fully placed my trust in His Plan.

This is what I am working on.

There have been numerous times over the past few months where I’ve veered off course. My light has gone out and I’ve had to stop and re-center my thoughts. Sometimes this takes days. I deal with anger, despair, loneliness, emptiness. It is very heavy and dark. But I fight for the light.

We were having a really hard time a few weeks ago. I cried every day. I withdrew from anything that wasn’t necessary. I felt like I was sucker punched with another round of grief. I was fighting for light. I stood at our kitchen sink looking out the window. The ground was blanketed with snow. The sky was grey and I thought “This looks like my life. I never thought this would be my life – no color.” I blinked and to my amazement, right down on our fence post sat a cardinal. There it was – my light. I’ve held onto that moment for the past few weeks – it’s been my center. I am waiting patiently for the Lord. I am working to be brave and courageous.

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To our sweet Toby – I hope your days in Heaven have been beautiful. For every day that passes, I am one day closer to seeing you again. You are our light and Luke is our rock. I will never have a prouder moment than being your and Luke’s mom. I love you to the moon and back, baby boy.

Xoxo,

Mommy

 

Wait, my daughter, until you learn how the matter turns out.

—Ruth 3:18

My Faith in God

faith, Family, grief, loss, Marriage, Parenting, Toby

This has been a difficult week for our family. Grief is hard. It’s exhausting. It comes from nowhere. No warning. And it stays, for as long as it likes. You can have a good moment and the next you are crying. That happens with me a lot. Your body can ache from the physical pain of grief, not just pain from your heart.

We pray for strength. We pray for understanding. We pray that Toby sees every tear that we cry, not because we want him to see the pain – there is no pain in Heaven. Our prayers are that he see the love. The love that comes with every break of our hearts and every tear we have shed over the last 14 months.

I am sharing this because we have said from the beginning that we want to educate people on what it is like to be grieving parents. To have our infant son, die. This is what it is like.

 

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Today I read a post from another grieving mother reflecting on what she feels when she visits the cemetery. She talked about experiencing peace and a connection with being there with her child. I envy her perspective. I envy this amazing trust she seems to have in Gods plan.

Today, while it started off well, quickly turned difficult. My arms ache to hold Toby, to hear him laugh with Dan or Luke, to feel his hair and see his bright blue eyes.

I drive home past the cemetery most days and most times I need to stop. But today there is more anger here. I hate that the ground has fresh cut grass – that reminds me of how long it’s been since we buried him. I hate that the leaves are falling – a reminder of a season that I used to love, but now holds my broken heart. I look at his stone and want to pull his name from the marble. I don’t want there to be an end date etched in there. I don’t even want to be here. As I start to descend over the hill to this hand-picked spot, I can’t make it past the last stone before his, before tears stream down my face. Every time.

I want to have faith in God’s plan. I want to have joy in knowing Toby is in Heaven walking in His Kingdom. I want to take heart in knowing that he felt no pain – that his heart will never break, like mine or Dan’s.

But as a grieving mother, sometimes my faith in God is shaky. My vision in his goodness is blurred by days of tears, wishing for my Toby to be back here, on Earth, with us. Sometimes, even falling to my knees to pray, my heart still feels heavy and my arms empty when I get back up.

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Do not be afraid to ask about Toby. Do not be afraid to ask how we are feeling. And also, on a day when we may not want to talk, please understand and do not hold it against us. You do not know what we are struggling with. You do not know the memories that are flashing through our minds. We understand that too. We only pray for patience, consideration and respect.

We are parents of two beautiful boys, who are our world. They are loved unconditionally and they make us very proud.

Nine Months

2017, Family, grief, loss, Toby

My Sweet Toby,

We miss you so very much. I have spent this past week fighting the flashes of time. Fighting the pain that each memory brings. I have tried to prepare myself for this very week. But, as with the last nine months, there is no way to shield my heart from the pain that comes with the love we have for you, our son.

We continue to have people tell us that you are in the best place. You are taken care of. A place more beautiful than we can imagine. You are smiling. I believe you are, but that does not make me want you here any less. It does not make me smile without crying. My heart still breaks because I cannot hold you.

I cannot believe it has been nine months since I held you. It makes me angry that it has been that long. I miss you. I want to know if you miss us, but I don’t want you to be sad. I don’t want you to wonder why we can’t see you or why we don’t talk to you if you’re right beside us in spirit.

It makes my heart ache to think that you are here, but I can’t see you or hold you. I’d give anything to give you a hug and a kiss. To sing you to sleep or turn on your music box on the crib and watch you watching the fish swim. We haven’t been able to turn that on since you died. I stood by the crib just the other day with my hand on the button, but I couldn’t do it. I was afraid of what would happen if I turned it on.

I’m sorry that Dad and I have not been as strong this month. We are having a really hard time accepting the reality of you not being here, especially with your first birthday being three days from now. We love you, Toby. We try so hard each day to be strong for you and for Luke. You boys are our reason for taking another step. We try to do hard things every day, not because we want to, but because we know you would want us to.

We feel you with us. We know from what Luke says that you are with him often. We ask the angels to take our love to you. To tuck you in each night with hymns, kisses and sweet dreams. We pray that the last nine months have been filled with beauty, grace, love, and happiness for you. That you have been able to provide joy and smiles to many, as you travel the path that God has paved for you. One that we don’t understand, but one that we are trying to trust, through the unimaginable pain.

We hope you hear our prayers, Toby. We hope you feel us missing you and know that while we count the months that you have been gone from our arms, we see them as days closer to the time that we are reunited with you in Heaven. We love you more than you could ever imagine, Toby. No amount of time will ever change that. We miss you more than you will ever know.

love, Mommy

Was always so curious, even at a few weeks old.

❤️

International Bereaved Mother’s Day

2017, Family, grief, loss, Parenting, Toby

“A mother is not defined by the number of children you see, but by the love she holds in her heart.” 

Today, May 7, is International Bereaved Mother’s Day around the world. A day to recognize the mothers who have lost a child or children. A day to open our eyes, ears, and hearts to mothers with empty arms and a broken heart, that could be sitting right next to you. 

Please take a moment to read my letter to other grieving mothers on Pittsburgh Moms Blog: 

http://pittsburgh.citymomsblog.com/motherhood/international-bereaved-mothers-day-letter-tobys-mom-grieving-mothers/

If you are a mother who is a part of the bereavement community, I am sorry you are here. But please know, you are not alone.