My Battle With The Beast

2018, faith, grief, loss, Toby

August holds my fear. It holds my happiness and feeling of wholeness. August is where ‘who I was’ lives and ‘who I became’ appeared. August holds my sons last breath. It holds my whole heart. August holds captive my sons future and every motherly wish I could ever have for him.

As I stand on the doorstep of another anniversary, I have started to wander into the past, hoping to pull with me each and every moment, no matter how significantly small, from our final weeks with Toby. But, as it does in a grievers soul, the terrifying fear and stillness, that lives inside the 24th of this month; the demons that guard the door back into my life two years ago growl and snarl looking directly into my face, almost taunting me. “Come in. Step through that door again. You think you have more armor, better armor, this year? Give it a try.” Taunting me.

There have been moments over the past few weeks when I can feel the anxiety of battle manifesting in my bones. Like my body knows what’s coming, but my mind, it is trying to focus. Realign. The ache inside my bones. The heaviness inside my arms – 9lbs of happiness, to be exact, it’s there. I feel it. My heart beating so fast in my chest, I am afraid that because it is shattered it’s going to break lose inside me and I am going to lose the little pockets of hope that I have been digging for, forever.

Have you ever thought about your heart? I don’t mean what the science tells us. I mean really thought about how big our hearts get when they are filled with love – real love?

How do our hearts get that big?

It’s almost as if the happiness, joy, thankfulness, wonder, awe, pride, excitement – it all seeps out into our pours and tells us “This is happiness. This is what you were made for.” Have you felt that?

I have. I did. Two years ago. Toby was 12 weeks old. I was in the car. Sitting at a stoplight, talking and singing with Luke. I sat and watched both of my boys in the rear view mirror – Luke laughing and Toby looking across the back seat at his brother with curious eyes. My heart swelled. I looked at them and thought “My God. They’re so beautiful. I am so lucky to be their Mom. I couldn’t love them more.”

I am caught in that moment. That was the morning of August 24. Those were the final moments I had with Toby before I dropped him off for work.

How in Gods name could I have left him that day and not known how our lives would change?

I can still feel that feeling, except now when it comes over me, tears flow from my eyes so heavily and they don’t stop for a very long time. My breath is sucked out from within and I can feel all the brokenness inside me.

That’s where my happiness lives – inside the early hours of August 24. When I thought I was living my dream. What I had prayed for, longed for, worked for, wished for – my whole, beautiful family. Literally my pride and joy. Were right beside me and in an instant, gone.

That is also where the deepest pain and sorrow, pain I didn’t even know existed, came alive. It was awakened. Its rumbling that day, its pressure to get out of those places it was locked in, and melt my soul, it succeeded.

That pain is like lava, it is so fiercely hot, paralyzing, it melts every other feeling away. It turns every feeling to stone. It molds your heart into a shape that is unrecognizable and also leaves you feeling just the same – “Who is this? Who am I looking at? What did we do to deserve this? Where is my life?”

“Where is my son?”

August is my month where all these demons come alive. It is the worst month of the year for me – where I have been climbing to get to for 24 months has to wrestle with the Devil and where he wants to drag me back down to. Where my faith is tested every second of the day and where the pain of becoming a grieving mother never dulls.

Pray for me, as I go to battle with this beast. Remind me, in any way possible, that our beautiful Toby is still alive inside all those million pieces that my heart has been broken into. Show my family his love and joy can make a difference in someone’s day. Those are what I arm myself with as the knob turns to open the door on this horrific month.

August holds my son & my heart.

God help this broken mother make it through.

21 months & Lots of Prayers

2018, Creating Change, Family, grief, Joy, loss, The Little Fox | Toby's Foundation, Toby

Guys! It’s official – The Little Fox | Toby’s Foundation is incorporated & approved! 🦊

In just two weeks time all of our paperwork was reviewed and approved. We were told to not expect anything for 6-8 weeks. As soon as I started to read the letter last night I thought “This is all Toby’s doing. He’s opening doors again!”

He knows his momma and she can’t wait for anything, especially when there’s work to be done, families to help, and lives to save.

I laid down with Luke at bedtime last night and as we said prayers, thanking God for another step in this journey, and saying goodnight to Toby, this came through my thoughts…

“Get some rest momma. We have lots of work to do.”

By God’s hand and Toby’s guidance, we’re going to make a difference with The Little Fox. There are many hopes & dreams for this nonprofit and our plan is to take it one day at a time. There will be opportunities that are a perfect fit and others that will not work for us. We will do our best to make the right decisions and help as many families and children as possible.

Thank you to every single person that has helped us over the last 21 months. Without the support, comfort and encouragement of our family, friends, neighbors, community, local businesses, other grief families, other memorial foundations, doctors, Owlet, and every anonymous, kind hearted person that has found a way to touch our hearts and to help our family – THANK YOU!! We would not be here, if it weren’t for all of you.

Stayed tuned to see what we’ll be working on next. We’re currently matching donations for the Owlet Smart Socks in the Pittsburgh area to be donated over the next few weeks. Then, our focus will turn to August. With our Foundation Board established, we’ll be working together on an event for August where we hope to see many of you. We will also be doing our “Random Acts of Kindness” campaign, which will kick off August 1. We hope to see as many participants as last year and see the ways that Toby’s joy can travel around the world.

Please keep our family in your prayers as we approach Toby’s 2nd Birthday on May 27. This does not get any easier as the months go by. Our hearts remain broken, missing Toby beyond belief. We know the best way to honor our son is to help others and share the joy that he gave our family with those children and families. That is what we are doing and will continue to do.

God Bless,

The Sterns ❤️

#thelittlefox #joyfortobystern #SIDS #journeythroughgrief #august24 #ourangeltoby

Little Pieces of Light & Peace

2017, faith, Family, grief, loss, Toby

As Lent began, I searched for my focus for the next 40 days. I was looking for something that I could “do” that would help me in my grief, but also something that would help provide little pieces of light and peace. When we moved into our house last year there were two cardinals that would fly into the tree in front of our window in the family room. Every time we saw them we’d always hurry to the window “do you see them?” we’d say to Luke, as one of us was holding Toby in our arms. It was a moment of the day that made us smile. Last week I was sitting on the couch and something caught my eye at the window. I looked out and it was a cardinal, by itself, sitting in the tree. I hurried to the window to get a closer look at him, there for a split second, and then he flew away. There are many articles that say cardinals are visitors, angels, from heaven. It made me wonder, were the two that visited us over the summer watching over Toby? And the new visitor, this spring, is he alone for Luke? Or is that Toby visiting us?

We went away to the beach a few weeks after Toby died. In the mornings, the sky had these beautiful clouds with strong rays of light streaming down and reflecting on the ocean. Looking at it made me wonder what that sight was like from Heaven. How beautiful that must be. Can you imagine being able to have a seat and see any spot in the world? I cannot, but just the thought of that takes my breath away. Being able to have a place to sit in Heaven and look over your entire family? That is truly amazing.

I picked up a prayer book from church at the start of Lent. It has a short daily reflection and a few excerpts from Jesus’ journey to the cross. The focus of this prayer book is just that, prayer. How we pray. What we say to God. What we ask of God. His expectations for us.

Through these reflections, the Blessed Mother’s journey through this time have been front of mind for me. She is a grieving mother. She is a strong mother with the utmost faith in God. How did she do it? Through these first 20+ days of lent, I’ve found my focus. The Blessed Mother. I am laying my grief, anger, tears, sorrow, emptiness, loneliness, a longing to hold my sweet Toby in my arms and kiss his face, and the missing sound of TWO sets of tiny feet running through the hall upstairs, or our sons innocent laughs that we will never hear because they can’t play together. All of this. I’m laying at her feet for Lent and trying to join my grief to hers.

This 24th of March marks seven months. Those of you who have continued to follow in our journey through grief, through the loss of our beautiful son Toby, I am sure you are able to see some of our highs AND lows. And while there may be more of the latter, I continue to work on finding more of the former. It is so hard. Too hard to put into words. Too hard for many to understand the struggles we face, daily. The judgement, not said, but felt, to be happy, trust, move forward, accept. It is intense and paralyzing. I know, indisputably, we do not take a thing for granted anymore. I will be the first to tell you that prior to Toby’s death yes, I did take things for granted. So while I may not look like the most grateful person when you see me, I may not smile as much as I did, the depth of my gratitude for everyday moments runs deeper than you know. For I know, more than most, how quickly my greatest blessings can be taken away. How one, “Have a good day” kiss or “I love you” can be the last. I know the immeasurable pain of being robbed of ONE of the TWO greatest joys of my life.

As the seventh month anniversary comes at the mid-way point of Lent, I am noticing a change in myself. A loss of the pause when a stranger asks me about my children, because I don’t want them to be uncomfortable. The urge to be able to talk more about our loss and our joy with Toby for the time he was here. The desire to find ways to shed light on grieving parents and the societal pretense to “not talk about it” because it’s too uncomfortable. The bad days are still so dark and the worst moments still come at the drop of a hat. I continue to work on the acceptance of that. My prayers are different and the way I talk to God has completely changed. I continue to pray that when Toby sees Dan and me, he knows that the tears we are crying or the anger that causes us to curse at the sky is because the hole in our hearts for him is so big and each day without him is so hard. That there are just no words – only tears. I continue to hope that one day, through my actions, rebuilding, and finding a purpose on this journey I did not choose for our family’s life, that I can proudly say “Let me tell you about Toby. He is the one that showed me how to love beyond all measure. How to survive the unimaginable. How to live life for him.”

I am not there yet, Toby, but I’m working on it. Continue to hold my hand and my heart, sweet boy.

All the Love

2017, faith, Family, Home, Parenting

To the new mom who is running on two hours of sleep; no shower in a few days; same clothes you slept in from the day before; three week old baby asleep on your shoulder and the living room in front of you a mess from toys your two-year old has been playing with – I’m praying for you.

To the new foster mom in line at the store. Your cart not only filled high with food, clothes, winter jackets, hats and gloves, diapers, formula, soap and juice, but the two little girls that you just opened your home and heart to – I’m praying for you.

To the women in line at the pharmacy, holding a pregnancy test, your stomach in knots because you don’t want to go through the heartbreak of yet another miscarriage but yet you want a positive test; to be able to carry a healthy baby full term; and finally hold your child in your arms – I’m praying for you.

To the grandmother who has raised a family, watched her children marry and now have families and children of their own. Who have silently grieved while being strong for your daughters and sons as they have endured miscarriages, deaths of children, infertility and continual longing – I am praying for you.

To the mother who is now caring for her own mother. A women who adored her family and yet today no longer remembers who they are or who is caring for her, but loves you anyway and smiles as you brush her hair or sing her a song – I’m praying for you.

To the women who has done everything possible to conceive; ate all the right things; taken every pill or shot they’ve prescribed; prayed 1,000 times over and yet nothing is working and you feel like you’re body is failing you; preventing you from being the mom you always wanted to be; from your husband becoming a father; your parents a grandparent – I’m praying for you.

To the grandmother who is now raising her grandchildren, for whatever the circumstance may be. Who has opened her home to the laughter and tears, long nights and fights over what everyone wants for dinner, but goes to be each evening thanking God for these little blessings – I’m praying for you.

To the stay-at-home mom who would give anything for a night out, even if that just meant a trip to Target and a coffee on your own. Who was up before her family to finish laundry and pack lunches and who will have toys, books, craft supplies and dinner to clean up after bath time tonight – I am praying for you.

To the working mom whose alarm went off at 5am so you could get a workout in before the rest of your family was awake, worked a 8-5 day and only stopped to go to the bathroom once and whose lunch consisted of a pack of crackers and a diet coke. Who is on pick-up for daycare this week and would give anything for her email to stop while she’s watching just one episode of Mickey Mouse with her toddler before bedtime – I’m praying for you.

For the parents who have one child in the hospital and one, or more, child(en) at home. Who haven’t been in the same room with each other for weeks because they are focused on making sure each child is taken care of and feels like everything is going to be ok. Who take shifts sleeping and working, just to pay the medical bills and buy groceries, and sometimes don’t know what day of the week it is – I’m praying for you.

To the father holding the weight of the world on your shoulders so that your wife and children do not have to bear it. Finding all the right things to say when someone asks “how are you?”; defending and protecting your family with every ounce of strength you have that when you hit your knees to pray, all that comes are tears – I’m praying for you.

To the women and men who teach and care for our children while their parents are at work each day. Who comfort them when they are sick or skinned their knee playing outside. Who discipline them, even when you don’t want to, and show them how to share and pray. Who high-five them when they ace their spelling or math test and say “wait till you tell Mom & Dad” – I’m praying for you.

To the mother and father who’s weekly routine involves multiple visits to the cemetery, either before or after work, because you’ve suffered the loss of one or more children. Who spend time each week telling your children about what you wish you were doing with them, here on Earth, instead of them watching you from Heaven – I’m praying for you.

—

To anyone that reads this and can relate to any of these circumstances, I admire your ability to do it every day. I have seen each of you over the past few months and if it wasn’t for the death of my son, Toby, which caused me to look at life in a different way, I may not have seen you, or recognized how hard you are trying. I admire the patience you have, your ability to face each day and your dedication to those that depend on you. I wish you grace and peace for whatever road you are on. I know that you want the children in your lives to feel important and loved. And no matter what anyone says, they DO and that’s because of YOU. You do it best. You love them best and the exact way that they need to be loved.

I am praying for each of you this month because I have seen you and you’ve made an impact on my life, without knowing it, and how I look at every situation. Know that someone is praying for you and wishing that, if even for one moment of your day, you can see yourself and think “I am brave” or “I am doing my best.”

You do not feel it at all, I know. I’m right there with you. But you are. You are brave, and you are wise, and I hope you feel loved.

I found this leaf on the ground yesterday morning as I dropped Luke off. A little sign from our angel, Toby.

A New Endeavor

2017, Dan, faith, Family, Lucas, Marriage, Parenting, Toby

I have spend the last few weeks very focused in prayer. That was one of my small goals for the year. It has been normal in these times to also talk to Toby. Tell him what is on my heart and ask for guidance or some sort of sign as to whether or not I should even be carrying whatever it is that is heavy on my heart and mind.

An opportunity presented itself at the beginning of January as a way to help our mission of being a voice for grieving parents and parenting through the loss of a child, while also offering the chance to work with some amazing people. View the video below to see what door has opened for our family (video is ~10mins).

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