remember

My Battle With The Beast

2018, faith, grief, loss, Toby

August holds my fear. It holds my happiness and feeling of wholeness. August is where ‘who I was’ lives and ‘who I became’ appeared. August holds my sons last breath. It holds my whole heart. August holds captive my sons future and every motherly wish I could ever have for him.

As I stand on the doorstep of another anniversary, I have started to wander into the past, hoping to pull with me each and every moment, no matter how significantly small, from our final weeks with Toby. But, as it does in a grievers soul, the terrifying fear and stillness, that lives inside the 24th of this month; the demons that guard the door back into my life two years ago growl and snarl looking directly into my face, almost taunting me. “Come in. Step through that door again. You think you have more armor, better armor, this year? Give it a try.” Taunting me.

There have been moments over the past few weeks when I can feel the anxiety of battle manifesting in my bones. Like my body knows what’s coming, but my mind, it is trying to focus. Realign. The ache inside my bones. The heaviness inside my arms – 9lbs of happiness, to be exact, it’s there. I feel it. My heart beating so fast in my chest, I am afraid that because it is shattered it’s going to break lose inside me and I am going to lose the little pockets of hope that I have been digging for, forever.

Have you ever thought about your heart? I don’t mean what the science tells us. I mean really thought about how big our hearts get when they are filled with love – real love?

How do our hearts get that big?

It’s almost as if the happiness, joy, thankfulness, wonder, awe, pride, excitement – it all seeps out into our pours and tells us “This is happiness. This is what you were made for.” Have you felt that?

I have. I did. Two years ago. Toby was 12 weeks old. I was in the car. Sitting at a stoplight, talking and singing with Luke. I sat and watched both of my boys in the rear view mirror – Luke laughing and Toby looking across the back seat at his brother with curious eyes. My heart swelled. I looked at them and thought “My God. They’re so beautiful. I am so lucky to be their Mom. I couldn’t love them more.”

I am caught in that moment. That was the morning of August 24. Those were the final moments I had with Toby before I dropped him off for work.

How in Gods name could I have left him that day and not known how our lives would change?

I can still feel that feeling, except now when it comes over me, tears flow from my eyes so heavily and they don’t stop for a very long time. My breath is sucked out from within and I can feel all the brokenness inside me.

That’s where my happiness lives – inside the early hours of August 24. When I thought I was living my dream. What I had prayed for, longed for, worked for, wished for – my whole, beautiful family. Literally my pride and joy. Were right beside me and in an instant, gone.

That is also where the deepest pain and sorrow, pain I didn’t even know existed, came alive. It was awakened. Its rumbling that day, its pressure to get out of those places it was locked in, and melt my soul, it succeeded.

That pain is like lava, it is so fiercely hot, paralyzing, it melts every other feeling away. It turns every feeling to stone. It molds your heart into a shape that is unrecognizable and also leaves you feeling just the same – “Who is this? Who am I looking at? What did we do to deserve this? Where is my life?”

“Where is my son?”

August is my month where all these demons come alive. It is the worst month of the year for me – where I have been climbing to get to for 24 months has to wrestle with the Devil and where he wants to drag me back down to. Where my faith is tested every second of the day and where the pain of becoming a grieving mother never dulls.

Pray for me, as I go to battle with this beast. Remind me, in any way possible, that our beautiful Toby is still alive inside all those million pieces that my heart has been broken into. Show my family his love and joy can make a difference in someone’s day. Those are what I arm myself with as the knob turns to open the door on this horrific month.

August holds my son & my heart.

God help this broken mother make it through.

Stills

Family, grief, loss, Parenting, Toby

Lately, I’ve been trying to reflect on the last six months. The reality of six months makes me so incredibly angry. The months of September and October, I have no recollection of. Lucas turned 2 on September 4. I have two moments of that day that resurface in my mind – the first – standing on the deck, it was so hot, our family singing happy birthday to him; the second – standing in the kitchen looking out into the backyard as our nieces and nephews ran down off the deck to play. I remember blinking, leaning toward the window, thinking “someone’s holding Toby.” Waiting for one of our parents to walk down into the yard with him in their arms. But no one came. Now, when I look out the kitchen window, that’s the memory that plays in my mind.
There was a good stretch of time where I was finally sleeping. These past few weeks I’ve been waking up multiple times a night. I woke up one night last week, while Dan was away for work, and I swore I heard crying. Not Luke’s cry. It was a baby, the softest whine. I opened my eyes thinking I would see the monitor. Nothing. Darkness. And the sound was gone.

The waves of tears and uncontrollable crying have been replaced by a calmness that I absolutely hate. I feel numb again, like I did in those first weeks. I hate it. I feel guilty that I can’t cry when I feel like I need to. But then there are moments it is all I can do. I am sad, depressed, angry – nothing anyone says is the right thing.

I never experienced pain or loneliness until Toby died. You think you experience pain; you think the loss of someone you love is beyond words; you think people understand. We don’t. I unfortunately can say this, because I’ve been on both sides of this. 

You have no idea the pain of a grieving parent, unless you are a grieving parent. There have been many days this past month where my emotions are so bottled-up, feeling hurt, lost, and alone – the tears come when they come and there is no choice but to surrender to those feelings, because I don’t have the strength to stop them. 

I said before that six months makes me angry, and most days it does. When I look at the calendar or the date in the bottom corner of my computer, I instantly think another day away from you. My arms hurt. I feel the pain inside and out and then, like another wave of emotion, I feel guilty. How should I feel? Do people look at us and think we should be moving through this grief more smoothly or quicker? Am I being the best mom I can be for Lucas? People say, It will get better; time will help; it won’t hurt as bad.

Yes. Yes it does. It does hurt as bad. As bad as August 24. The flashes in my mind on any day are enough to knock the wind out of any mother. On a bad day? They’re a nasty nightmare. The sound of an ambulance siren. The lights, even if I close my eyes, the red and brightness, flash and I can’t breathe. Some routes home, I look out the window sometimes and feel like I’m not even moving, but the feeling in my heart and stomach is the same from that afternoon. There are no words for it.

Others say things, intending to be helpful, but aren’t. I’m trying to learn to take what is, and leave what isn’t.

The weather the past few weeks has gone from 30 degrees and snowing one day to 60 degrees and sunny the next. I think these glimpses of spring, of warmer weather, are bringing emotions with them. As much as the past six months have been unbearable, I’m starting to feel anxiety for the next six. Toby’s birthday. June. July. August. One year. Vacationing without him. Going back to the pool and parks where we spent 12 amazing weeks as a family of four.

Some have said to us, I don’t know how you do it? I really don’t know either. Some days we just don’t. We don’t leave our house. We stay inside with Lucas and our dogs, Murray and Theo, and do whatever we feel like doing. I used to long for those days, when we could enjoy the boys together. Laugh. Play. Sing. We still have those days, but now I long for Toby to be there with us. Sometimes when I close my eyes, my wish is that I’ll open them and he’ll be right there in the swing. That’s a still that’s in my mind. The still of his face in the car the morning of August 24 when I was taking our boys to daycare. He was smiling and laughing at Lucas. I hate hitting the light on Rt. 22. That’s the still that’s in my mind, except when I hit that light, I almost feel like I’m watching my life. All the lights, people, fast moving vehicles – they haven’t stopped, or even slowed. But if I look right or left, there’s no sound, there’s no color. It’s just still.

 As I continue to write, while it helps sometimes to get the feelings out and on paper, I hope that it will reach someone who’s maybe feeling the same. Whether in the first year of loss or the tenth. People go through many struggles. The loss of a child is a big struggle. A big, traumatic, loss. There is no fix for this. To lose a child is to lose the very heart and soul of you. My prayer right now is that this darkness that has come back will somehow make way for a time that will fuel me, us, to do things we never dreamed we could do. All while keeping the memory of our beautiful, blue-eyed, boy alive. And even though they hurt, I pray the stills never go away.