The Farley-Kluger Initiative – Parental Bereavement Leave

2017, Creating Change, Family, grief, loss, Parenting

www.farleykluger.com

Grieving Dads: To the Brink and Back

Over the last 10 months I have come across other grieving parent’s stories, whether at in-person meetings, from acquaintances that know someone who has lost a child, and through online forums and blogs supporting the bereaved community.

There have been parents who’ve had to return to work three days after their child has died – THREE. Three. Some were given 7 days and for the employer, that seemed gracious. Other parents who weren’t mentally ready have been given an ultimatum – with the end result being the loss of their job. Some have chosen to quit their job because the pressure of being back into a position and being at the top of their game was what was expected, but not anything close to what they could handle.

I cannot even fathom these situations. I hardly remember the weeks following Toby’s death. I didn’t drive for almost a month. I avoided the grocery store like the plague. Even just stepping out into our yard what a feat because I was petrified someone on our street would stop to talk to us, not knowing that Toby was no longer there.

We, Dan and I, have been blessed that the concept of returning to work was not on a 7 day time clock. That was one prayer we didn’t even know to pray, but an answered one that we now thank God for continually.

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Today’s FMLA allows (up to) 12 weeks off unpaid for the birth of a child, adoption of a child, care for a sick family member or an injured service member. There is nothing for parents whose child or children have died.

In 2011, grieving dads Barry Kluger and Kelly Farley started the Farley-Kluger Initiative to Add Loss of a Child to the 1993 FMLA, in honor of their children, Katie and Noah Farley and Erica Kluger.

Any parent or guardian who is employed needs time to grieve and return to work to organizations they are loyal to, in the best condition possible.

In honor of those who have lost children or know someone that did, please take a look at this petition – SIGN ITSHARE IT – and ask our leaders in Congress to put aside differences and show compassion for those that grieve now and those that will in the future.

www.farleykluger.com

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Here is an excerpt for the letter that I wrote to accompany my signature on the Farley-Kluger Initiative petition:

“As a bereaved parent who lost our infant son, Toby, nearly 10 months ago, I support the The Sarah Grace-Farley-Kluger Act/ The Parental Bereavement Act of 2017 and the efforts to modify FMLA to include any bereaved parent who is in need of the support and benefits that are outlined in the Family Medical Leave Act. Bereaved parents should be allowed the time to resurface from this life-altering event, or at least get to a place where going to work helps bring some sense of normalcy back into their lives, and not have to rush back into it before they are ready. There is no healing from the loss of a child, but requiring parents to return to work because they need their salary and benefits to continue to support the everyday needs of a family is just wrong. I encourage you to give this issue serious consideration for those of us who now, and in the future, will be living with children in Heaven.”

As we continue our initiative of incorporating The Little Fox, a primary focus of our work is to build support and education around the lives of bereaved parents. The Farley-Kluger initiative hits right on the head of these issues that are a passion of ours and something we want to be able to support and CHANGE. Just like I said a few weeks ago “uncomfortable conversations create change.”

This is just one step to creating that societal change. And, it’s a big one. Please be a part of making this happen!

Disclosure: While we are very much in support of this amendment to the Family and Medical Leave Act of 1993, we want to make it clear that following Toby’s death we were blessed to have employers that allowed us the time that we needed and supported our family.

Nine Months

2017, Family, grief, loss, Toby

My Sweet Toby,

We miss you so very much. I have spent this past week fighting the flashes of time. Fighting the pain that each memory brings. I have tried to prepare myself for this very week. But, as with the last nine months, there is no way to shield my heart from the pain that comes with the love we have for you, our son.

We continue to have people tell us that you are in the best place. You are taken care of. A place more beautiful than we can imagine. You are smiling. I believe you are, but that does not make me want you here any less. It does not make me smile without crying. My heart still breaks because I cannot hold you.

I cannot believe it has been nine months since I held you. It makes me angry that it has been that long. I miss you. I want to know if you miss us, but I don’t want you to be sad. I don’t want you to wonder why we can’t see you or why we don’t talk to you if you’re right beside us in spirit.

It makes my heart ache to think that you are here, but I can’t see you or hold you. I’d give anything to give you a hug and a kiss. To sing you to sleep or turn on your music box on the crib and watch you watching the fish swim. We haven’t been able to turn that on since you died. I stood by the crib just the other day with my hand on the button, but I couldn’t do it. I was afraid of what would happen if I turned it on.

I’m sorry that Dad and I have not been as strong this month. We are having a really hard time accepting the reality of you not being here, especially with your first birthday being three days from now. We love you, Toby. We try so hard each day to be strong for you and for Luke. You boys are our reason for taking another step. We try to do hard things every day, not because we want to, but because we know you would want us to.

We feel you with us. We know from what Luke says that you are with him often. We ask the angels to take our love to you. To tuck you in each night with hymns, kisses and sweet dreams. We pray that the last nine months have been filled with beauty, grace, love, and happiness for you. That you have been able to provide joy and smiles to many, as you travel the path that God has paved for you. One that we don’t understand, but one that we are trying to trust, through the unimaginable pain.

We hope you hear our prayers, Toby. We hope you feel us missing you and know that while we count the months that you have been gone from our arms, we see them as days closer to the time that we are reunited with you in Heaven. We love you more than you could ever imagine, Toby. No amount of time will ever change that. We miss you more than you will ever know.

love, Mommy

Was always so curious, even at a few weeks old.

❤️

Sequential Why’s and What If’s

2017, Family, grief, loss, Parenting, Toby

I hate this day. I hate going to bed the evening of the 23rd of each month. I hate waking up the 24th of every month. My motions and routine are clouded by continual flashbacks of August 24th. I can see the events of that day play out in my mind. Every step I take this day, of the last eight months, I am constantly questioning life.

What if we would have left earlier that day? What if we would have been later? What if I hadn’t gone to work? What if Dan had not been at school? What if I wouldn’t have changed Toby’s outfit at the last minute that day? God knows I have idea why I decided to change him in the first place. What if? 

Luke is at the “why” stage of his toddler years. The last few days have been a constant barrage of questions. As he was quizzing me on the way to daycare this morning with sequential why’s, my mind drifted. I thought, if I could have a day with God, I would probably sound just like Luke.

Why did you take Toby? Why could he only be here for 12 weeks and 5 days? Why did you give us this perfect, healthy, beautiful, happy baby and then take him away with no explanation? Why couldn’t you let me tell him good-bye? Why did you take Luke’s little brother? Why do you keep placing circumstances right in front of Dan and I, that to us, seem like nothing but slaps in the face? Why do we have to live our lives without him?

Why? Why? Why? Why? 

The months of March and April proved to be an emotional roller coaster. Things happened, but provided no answers for why Toby died. His headstone arrived and was placed at his grave, unbeknownst to Dan and me. While it is beautiful, just as we hoped. Seeing his name on it, bring so much emotion and sadness, it’s exhausting. The emotional wounds re-opened, the trauma resurfaced.

I am, we are, dreading the month of May. It will begin the months that will overlap with the time that we had him here on Earth.

With the weather getting warmer and the time changing, I have been trying to run again in the evenings. It hasn’t been going well. I go about a mile and my legs get very heavy, my hands start to sweat. I stare at the ground directly in front of me and I hold the tears in for as long as I can. Until I just give up. I shouldn’t be running alone. He was with me, in the stroller, right in front of me – staring at me while we ran. I would talk to him, ask him if he saw the trees or the birds. Tell him what was around us or how far we had gone. He would smile at me. I would smile back. Now the space in front of me is empty. It’s a constant reminder that I will never see him smile again.

August 18_Running with Mom

Running together at the park, August 18, 2016.

I pray. Every. Single. Day. He is smiling. I pray, that he sees Dan, Luke and me smile and that he knows behind each smile is a wish and an ache that he is was here with us. This constant ache in my heart that no amount of joy will ever take away.

Toby, we miss you more than any words or actions could describe.

God, why can’t you just bring Toby back to us?

Music – A blanket thru grief

2017, grief, loss

I’ve had a few people lately ask “what is helping?”

Every day is different. Every situation needs a different crutch or band-aid. I thought that maybe these songs could help someone else, as I’ve searched many times for song lists that help others through grief, only finding a few.

Music touches the soul in a special way. Sometimes it lifts me up and sometimes it causes me to break, but even in those lowest moments I still let the song play. If it is causing that much emotion in my heart and mind, there is something there that Toby wants me to hear.

Im already there

Here are some of the songs that I’ve found help me. I love this line “Sometimes our soul needs a soundtrack.” For right now, this is mine:

 

Beam Me Up – Pink

Amazing Grace – Peter Hollens

There, There Katie – Josh Gray

Jealous of the Angels – Donna Taggart

Stars – Grace Potter

Who You’d Be Today – Kenny Chesney

Waiting on an Angel – Ben Harper

Outskirts of Heaven – Craig Campbell

Make You Feel My Love – Adele

I’m Already There – Lonestar

They Will Be Done – Hillary Scott

 

What songs have you used to help in your grief journey? Maybe they remind you of your loved one, or have lyrics that give you hope?

Please share in the comments below.

 

Easter Morning in Heaven 

2017, faith, Family, grief, Home, Joy, loss, Lucas, Marriage, Toby

Last Sunday as we sat in church for Palm Sunday mass, I was overcome with emotion thinking of what Heaven would be like for Easter and what beautiful sites Toby would see this week. 

Can you imagine, seeing Jesus’ face on Easter morning? I cannot, but the thought of my beautiful son having the honor to be in His presence this morning, it takes my breath away. 

We were gifted a tree in rememberence of Toby in the fall and planted it in our front yard. It has grown a few inches through the winter and the past few weeks the buds have been forming. Yesterday, a few of them bloomed. I thought it was so fitting that the flowers on his tree first bloomed during Easter week. These magnolia flowers, with maroon, pink and white on their petals are simply beautiful and to me are a glimpse from Toby of the beauty of Heaven. 


This is Luke’s third Easter and each year I’ve enjoyed buying him a cute tie for his Easter outfit. I cried shopping this year because I wished I was buying two ties. I should have just bought two, and I was mad when I got home that I didn’t. When I was pulling Luke’s Easter basket out of the closet I found his tie from his first easter, so I took that out for Toby. 

We had bought Luke a basket with his initial on it for his first easter. This year I grabbed a small basket from Target for Toby, but when I was putting them together last night, I was again regretting not having one made that was special for Toby. I remembered that I had fabric I had found through the winter, but had not used yet. It matched the basket I had for him, so we improvised and made him his own. Fox and all. 


Yesterday while walking back from the park, Luke picked a dandilion and immediately said “Toby’s really going to love to see this.” We looked down at him, smiling. Yes, he will, buddy. He loves to see you playing and having fun. 

Our one son is not here and my heart breaks daily to see his sweet face and smile with him. We try to do things to make him a part of everything that we do and fully present in those special days and moments. I can’t imagine not including him in all these moments. Maybe, in a way, they comfort our hearts. But my hope is that he can see us and smile at what we are doing for him. 

With Luke being sick this weekend, he was up before the sun again today. But, sitting in the living room, with only the tv on this morning, I was able to watch the sun rise outside our window. It rose through the two houses across the street, but more beautifully, from where I was sitting, it was directly above Toby’s tree in the front yard. 


This picture doesn’t do it justice, but it was truly beautiful. Another sign of Easter Sunday. 

While we are all celebrating, singing hymns at mass today, or praying in our homes, there are many empty chairs around our tables. Those that have just left their families and those that have been gone for some time, but are missed just as much. Our hearts ache for them to be here, but remember, they are at the table with Him today. They get to see His face first this morning. Wow, can you even imagine what a beautiful sight that must be? 

He is not here. For He is risen, as He said. –Matthew 28:6

Wishing you and your families a beautiful, healthy, and blessed Easter holiday. 

Blessings, 

The Stern Family 

Katie, Dan, Lucas & Toby 

Little Pieces of Light & Peace

2017, faith, Family, grief, loss, Toby

As Lent began, I searched for my focus for the next 40 days. I was looking for something that I could “do” that would help me in my grief, but also something that would help provide little pieces of light and peace. When we moved into our house last year there were two cardinals that would fly into the tree in front of our window in the family room. Every time we saw them we’d always hurry to the window “do you see them?” we’d say to Luke, as one of us was holding Toby in our arms. It was a moment of the day that made us smile. Last week I was sitting on the couch and something caught my eye at the window. I looked out and it was a cardinal, by itself, sitting in the tree. I hurried to the window to get a closer look at him, there for a split second, and then he flew away. There are many articles that say cardinals are visitors, angels, from heaven. It made me wonder, were the two that visited us over the summer watching over Toby? And the new visitor, this spring, is he alone for Luke? Or is that Toby visiting us?

We went away to the beach a few weeks after Toby died. In the mornings, the sky had these beautiful clouds with strong rays of light streaming down and reflecting on the ocean. Looking at it made me wonder what that sight was like from Heaven. How beautiful that must be. Can you imagine being able to have a seat and see any spot in the world? I cannot, but just the thought of that takes my breath away. Being able to have a place to sit in Heaven and look over your entire family? That is truly amazing.

I picked up a prayer book from church at the start of Lent. It has a short daily reflection and a few excerpts from Jesus’ journey to the cross. The focus of this prayer book is just that, prayer. How we pray. What we say to God. What we ask of God. His expectations for us.

Through these reflections, the Blessed Mother’s journey through this time have been front of mind for me. She is a grieving mother. She is a strong mother with the utmost faith in God. How did she do it? Through these first 20+ days of lent, I’ve found my focus. The Blessed Mother. I am laying my grief, anger, tears, sorrow, emptiness, loneliness, a longing to hold my sweet Toby in my arms and kiss his face, and the missing sound of TWO sets of tiny feet running through the hall upstairs, or our sons innocent laughs that we will never hear because they can’t play together. All of this. I’m laying at her feet for Lent and trying to join my grief to hers.

This 24th of March marks seven months. Those of you who have continued to follow in our journey through grief, through the loss of our beautiful son Toby, I am sure you are able to see some of our highs AND lows. And while there may be more of the latter, I continue to work on finding more of the former. It is so hard. Too hard to put into words. Too hard for many to understand the struggles we face, daily. The judgement, not said, but felt, to be happy, trust, move forward, accept. It is intense and paralyzing. I know, indisputably, we do not take a thing for granted anymore. I will be the first to tell you that prior to Toby’s death yes, I did take things for granted. So while I may not look like the most grateful person when you see me, I may not smile as much as I did, the depth of my gratitude for everyday moments runs deeper than you know. For I know, more than most, how quickly my greatest blessings can be taken away. How one, “Have a good day” kiss or “I love you” can be the last. I know the immeasurable pain of being robbed of ONE of the TWO greatest joys of my life.

As the seventh month anniversary comes at the mid-way point of Lent, I am noticing a change in myself. A loss of the pause when a stranger asks me about my children, because I don’t want them to be uncomfortable. The urge to be able to talk more about our loss and our joy with Toby for the time he was here. The desire to find ways to shed light on grieving parents and the societal pretense to “not talk about it” because it’s too uncomfortable. The bad days are still so dark and the worst moments still come at the drop of a hat. I continue to work on the acceptance of that. My prayers are different and the way I talk to God has completely changed. I continue to pray that when Toby sees Dan and me, he knows that the tears we are crying or the anger that causes us to curse at the sky is because the hole in our hearts for him is so big and each day without him is so hard. That there are just no words – only tears. I continue to hope that one day, through my actions, rebuilding, and finding a purpose on this journey I did not choose for our family’s life, that I can proudly say “Let me tell you about Toby. He is the one that showed me how to love beyond all measure. How to survive the unimaginable. How to live life for him.”

I am not there yet, Toby, but I’m working on it. Continue to hold my hand and my heart, sweet boy.

A New Endeavor

2017, Dan, faith, Family, Lucas, Marriage, Parenting, Toby

I have spend the last few weeks very focused in prayer. That was one of my small goals for the year. It has been normal in these times to also talk to Toby. Tell him what is on my heart and ask for guidance or some sort of sign as to whether or not I should even be carrying whatever it is that is heavy on my heart and mind.

An opportunity presented itself at the beginning of January as a way to help our mission of being a voice for grieving parents and parenting through the loss of a child, while also offering the chance to work with some amazing people. View the video below to see what door has opened for our family (video is ~10mins).

 

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